Tuesday, June 2, 2009

Green Family "EE" Update Letter

The following is a copy of the update letter we mailed out concerning Ross and Abigail's progress and trip to Cincinnati. I posted a copy just in case some of you didn't receive a copy by mail.

Beloved Family and Friends,

Ross and I want to thank each of you for your support over the past 17 months. We have seen the face of Jesus through every answered prayer, word of encouragement, and financial support each of you have provided our family with. Our trip to Cincinnati was well worth the anguish, hard work, and patience it took to get there. I have honestly never seen a more educated and passionate team of doctors. They are dedicated to finding the best treatment option, and hopefully someday a cure for Eosinophilic Gastrointestinal Disorders.

Dr. Putnam (Gastroenterologist) performed Abigail’s initial scope in August, and said that her esophagus actually looked very good; however, the pathology report stated that the disease was still prevalent. Since there were still eosinophils present in her esophagus, Dr. Putnum decided to omit bananas from her diet. Her diet now consists of Neocate Junior only; a hypoallergenic elemental formula. In order to protect her oral motor functions, she is allowed to eat Smarties candy, Pixy Stix, and ice chips.

We also discovered in August, that Ross has Eosinophilic Esophagitis. His digestive track was in such terrible shape that he had to begin a formula only diet on March 1. The Neocate Jr. formula that he is on cost approximately $1200 per month, and the Lord has graciously provided $8440 worth of formula, free of charge from other families in the same situation. Praise God!! He is Jehovah-Jireh, the Lord our Provider! Ross is doing well. He has lost 52 pounds to date, and feels better than he ever has. Although there are days he “wishes” for food, I have never once heard him complain about drinking the formula. He and Abigail have shown unexplainable strength throughout this whole process.

We are currently awaiting our next trip to Cincinnati. We will be there from June 9 through June 13. It is our prayer that their eosinophil counts will be zero so that they can begin food trials. This has been our desire for quite some time; please pray that the Lord will bless the hard work and sacrifices made, so we can see them both eating food again.

Thank you again for all of your support, and most of all for the continued prayers. We could not have done all of this without you all nor could we have done it without our heavenly Father’s help. He has proven His sufficiency and faithfulness from the beginning. We have truly found joy in the midst of Eosinophilic Esophagitis, and look forward to seeing what the Lord has in store for our family and this disease. We will continue keeping everyone posted on our progress and hopefully the next letter will include foods! We love you all.

Ross and Lisa

And He said to me, “My grace is sufficient for you, for My strength is made perfect in weakness.” Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me.