Thursday, March 19, 2009

Change is in the Air...

My sweet baby is no longer a baby anymore. She is officially a toddler! We transitioned her from her baby bed to her "big girl" bed this past weekend. She has done better with the change than either one of the other girls did. Timidity is a good thing a times. All I have to do is threaten a spanking and she obeys....wonder how long that will last?! She has also been doing very well with the potty training. Yes, I do have pictures of that as well, but will save her dignity and spare her from embarrassment today. Of coarse, becoming a toddler also means curiosity and adventure! For the mothers who are new to toddlerhood...if your child is quieter than normal...RUN! See what they are doing! It usually means they are up to no good! ;) This is how I found my toddler as she was supposedly playing innocently in her room. No obstacle is too great between a girl and shoes!Last but not least, our newest developement. Reactive Airway Disease. Basically, this is the diagnosis before Asthma. Dr. K didn't want to diagnose her with asthma yet for several reasons. The main two being that it is a diagnosis that will haunt her forever (insurance wise) and the other because she hasn't had enough respiratory issues to warrant that title yet. So for now, when her respiratiry signs desipate or her coughing won't cease, we give her Albuterol updrafts through the nebulizer. When we first started this process there was screaming, squirming, and many tears. However, she quickly learned it helped her breathe more easily and that it was way more fun to do it herself. She is getting so big!!!



Saturday, March 7, 2009

Dad/Daughter Date Night and More...

Our church had a Dad/Daughter date night late night. It was a Hollywood theme, complete with a Red Carpet, pictures, and the whole works. They had a chocolate fountain with fruit and other fun foods to dip, yummy dinner, and speaking about daddies and their daughters. It would have been a wonderful night if Mary Grace hadn't gotten sick halfway through it. She told her daddy she wasn't feeling very well, but did not want to go home. They stayed for about an hour longer than they should have, but she just wasn't ready to leave her night with her daddy. Ross called to tell me they were heading home after leaving early because she wasn't feeling well, and his words were, "She feels a little warm." Prepared mommy had her jammies ready to go and the thermometer in reaching distance when they arrived home. By the time they made it, she had fallen asleep and was running 103 degree temp. I got her dressed for bed, gave her some Motrin and put her to bed. Her temp. spiked to 104 at 5 am; I sure hope she doesn't have the...do I dare say these words?...the flu!!!

On another note, Amanda, called me yesterday with some exciting news. Her parents had to evict a family from their rental home (no, this isn't the exciting part, actually it's rather sad), and found 6 1/2 cases, or 39 cans of Elecare Elemental formula! That is the exciting part. Elecare is the other formula allowed for treatment with EE. The Lord sure moves in mysterious ways, and we are thankful! God is good.

Sunday, March 1, 2009

Ross' Journey

Today marks day one of Ross' three month formula ONLY treatment. He is going to needs lots of words of encouragement; as well as, your prayers. Please join us in praying for strength courage, and that He would continually bless us financially throughout out this new journey. God has been so faithful to provide, and to do so abundantly. Ross attended the men's conference at our church this weekend. At this conference the Lord revealed the scripture listed below to Ross. I will be praying it over him everyday until this journey is complete.

2 Corinthians 12:9
And He said to me, “My grace is sufficient for you, for My strength is made perfect in weakness.” Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me.

Thursday, February 26, 2009

Our God is AWESOME!!!

Beloved family and friends, I can barely contain the excitement I feel as I tell you of how God is moving. What an Awesome and Mighty God we serve! My dear friend, Cassidy, posted a message to an eosinophilic message board about our family's needs, and here are the responses we received...are you ready for how Powerful God is? Let me share in His wonder....

"I have some extra Neocate Junior that I can send him. You can give them my email address and they can contact me."

"I have Neocate Jr. which I would think could be mixed to his needs. I may be able to give 30 or more cans. I have to go take stock but I always keep way ahead on supply. I am willing to continue to help and share my supplies ongoing if it is helpful for them. Please let me know if this is helpful. That is sad. They cannot get insurance to pay? I will send you all the extra cans I have now and then each month I can get 4o cans, but only need to use about 30+/- so I would love to share whatever surplus I can with your husband regularly. Is he planning to drink it? Yucky . . . our is unflavored not that flavored is good. I am sure this will help him feel and be better. Does your child also take formula or are you on elimination diet? I am willing to share anything I have that would help you guys. Let me know if there are other supplies you need and I will see if I have them."

"Just wanted to let you know that I am happy to help your friend out in any way. I know that there have been multiple people offering different types of formula. Once your friend gets on a formula and can tolerate it please have them contact me and I will be happy to purchase a case or two of whatever formula works for him.Thanks."

"Hope you do not mind me emailing you off list, but I did not want to post this. My son was on an elemental formula, Neocate Jr., and got worse (EOS were the highest ever!). We opted to go with swallowed Flovent. While on the formula, I ended up with several extra boxes of the Neocate, which is not expired. I would be willing to ship it, assuming that I would be reimbursed for postage. Let me know."

Are you smiling yet? I am. Thank you for joining me at the Throne; please continue to meet with us there. I am so thankful I can share in this experience with those I love so dearly. There is nothing more empowering than the Mighty Power of our Lord and Savior, Jesus Christ. Thank you, Jesus! Thank you, Jesus! Thank you, Jesus! We give You ALL the glory.

Tuesday, February 24, 2009

Pray, Pray, please Pray...

FYI: God just provided 8 cans free!!! He is working!

After much prayer and consideration, Ross has decided to do the hypoallergenic Elemental diet for the next three months. He will need to begin this by March 1 to have his 3 months in by June. This formula will help begin the healing process for his digestive system with the ultimate goal of putting him into remission. There is no risk involved with the formula and it will help with Abigail's future with EE as well; unlike the steroids. Here is where we are needing the prayers...this formula is extremely expensive! If ordered directly from the manufacturer, the cost will be minimally $1100 per month. However, I have found 24 cans on eBay for $375, BUT the bid only lasts for another 18 hours and 32 minutes! I know that it is only 24 cans, but that is 24 cans that we can get for nearly a third the price. Please be in prayer that the Lord will provide. I do not ask this lightly; I ask those reading this to join us diligently in prayer over the next 5 days. This is the part where I may very well melt down, but this formula is for my husband. The man I love and cherish will all of my heart. The man who is the best Daddy I have ever known. This is something that he NEEDS. It isn't something we want to do nor it is something we desire, but it has to be done. No amount of money should limit how we can care for those we love, but the harsh reality is that we don't have the money. We are barley scraping by as it is. We have hundreds upon hundreds of medical bills piled up on the bar that we have hardly put a dent in. Please don't see this as complaining...please see that this is coming from my aching heart. The Lord has provided for our every need, and I know He will not stop now. This is just me being very real. My husband is sick everyday. Stomach cramps, abdominal pain, difficulty swallowing, and vomiting are among the list of daily issues he faces. I rarely hear him complain. I talk about the strength Abigail shows, but the strength this man has is equally as powerful. The true testament that strength is ageless. I want to help him to feel better and to ease his discomfort! I just desperately want to give him the treatment that will be best for him; and I don't want cost to stand in the way. God's resources are not our resources, and we have seen Him move in mighty ways. Thank you for your prayers!! Thank you, Lord, for what You have done, what You are doing, and for what is yet to come!

Friday, February 20, 2009

The Hill Grands!

Aunt Belinda, this one is for you. Enjoy! Thanksgiving was a blast, let's do again soon.

The Grands (left to right)...Hannah, Caroline, Tyler, Andrew, Mary Grace, Lauren, and Abigail











Wednesday, February 18, 2009

Strength Comes in All Ages

Abigail recovered from pink eye just to find herself with a violent stomach bug. She was up from midnight to 5:30 throwing-up every 30 minutes to an hour. Poor baby!!! After the vomiting stopped, then started the diarrhea, and when that all ended...the fever came. (I'm sure when she is older, she will be happy to know that I am writing this for all the world to see). My child never ceases to show me but a tiny glimpse of the strength the Lord bestows upon us exactly when we need it. Oh...I have just remembered the perfect verse to back up that statement. This is taken from the Prayer Book Version, the Great Bible; published 1488-1569. Psalm 68:28, "Thy God hath sent forth strength for thee." Our loving God has already sent forth strength for us before the trial we are going to encounter even begins.